Stress, Caregiving Burden, And Coping Strategies Among Primary Caregivers Of Children With Intellectual Disabilities: An Analytical Study

Abstract

Research has found that the primary caregiver of an individual with an intellectual disability typically experiences considerable amounts of stress, anxiety, and other issues as a consequence of the constant demands of caring for an individual. This descriptive/analytical study looks at the level of perceived stress, burdens associated with the act of being the primary caretaker, and how these individuals cope with their responsibilities, as well as how these factors are related. The data obtained for this study were gathered using standardised measures for the assessment of perceived stress, caregiver burden, and ways to cope with these demands. The data indicated that caregivers tended to have moderate to high levels of stress, with subjective burdens (particularly emotional and social) being significantly higher than objective burden levels. Caregivers’ coping styles varied, with caregivers employing problem-focused coping strategies and seeking social support having lower levels of perceived stress and higher levels of psychological wellbeing, while those who engaged in avoidant-based coping strategies and dependent coping styles had higher levels of perceived caregiver burden. Therefore, the need for targeted psychosocial intervention (e.g. caregiver support programs, stress management training, and community resources) to promote resilience for caregivers of individuals with an intellectual disability is critical. This study adds to the body of literature on the mental health of caregivers, and supports the need for policy initiatives aimed at assisting families of individuals with an intellectual disability.